But his parents have no doubt that their little “fighter” will continue to amaze them and make them stronger in the process. Now, scientists from Sanford Burnham Prebys Medical Discovery Institute have identified a new … He is currently developing a narrative video game to discuss “hidden disabilities”, focusing on his own experience with hydrocephalus! To search Houston doctors, please select a specialty & submit your Zip Code below. ... COVID-19 survivors share stories of hope as they celebrate Thanksgiving News / 1 week ago. Those were the words of Sofia’s mom when she first learned that her daughter had hydrocephalus and was going into surgery the very next day. Now, the spunky 3-year-old is defying the odds – running, laughing, dancing, speaking two languages and more! Traditionally, fetal hydrocephalus has been detected prenatally using sonographic measurements of the enlarged ventricles. However they now know this condition does more damage to the body than just the eyes. Read his incredible story to find out how the countless nights in the hospital helped him find his mission in life! Scientists at the Center for Infection and Immunity at Columbia University Mailman School of Public Health have discovered bacteria linked to post-infectious hydrocephalus … An excellent survival rate is possible through treatment, which may be complicated and imperfect, but still, gives the baby a better chance at life than living with hydrocephalus. I was born with an eye condition called Congenital Toxoplasmosis. CONTINUE READING. And aside from the hydrocephalus, she’s doing great. There are many cause of hydrocephalus, which can be congenital or acquired in nature. Hydrocephalus is a very serious type of infant brain injury in which the ventricle spaces inside the brain become flooded by a backup of cerebrospinal fluid (CSF). Treatment is most commonly surgical with the placement of a CSF shunt. Hydrocephalus can occur in adults but it is most common in newborn infants who experience some type … Spinal taps relieved some of the pressure on the ventricles, and on Christmas Eve of 2012, she was transferred to Children’s Memorial Hermann Hospital, where pediatric neurosurgeon Stephen Fletcher, D.O., implanted an Ommaya reservoir for aspiration of CSF as a temporizing solution. Hydrocephalus Association A six month old, only child of the parents, was suffering from hydrocephalus (Homeopathy Treatment for Hydrocephalus) and otorrhoea. Please fill out the form below and a member of our clinic staff will contact you: Memorial Hermann Foundation, a 501(c)(3) Charitable Organization. And Dr. Sandberg explained everything to us. Despite her challenges, she continues to amaze everyone with her smiles and joy. Uganda, 2014. Now she’s about to achieve her childhood dream. She is truly a tough little hydrocephalus warrior! Olivia had Grade III intraventricular hemorrhages (IVH) – or brain bleeds – in both ventricles. Except for hydrocephalus secondary to physical obstruction of CSF passages within the brain or skull by blood or tumor, the exact causes of hydrocephalus are still not well understood. “After we learned she had hydrocephalus, we did our research and decided on an endoscopic third ventriculostomy rather than the traditional surgery to place a shunt. Congenital hydrocephalus, when a baby … Shunts also have a higher infection rate than endoscopic procedures. But his parents have no doubt that their little “fighter” will continue to amaze them and make them stronger in the process. Ultrasounds are used to view internal organs as they function, and to assess blood flow through various vessels. Related Stories. Diagnosis is confirmed with neuroimaging (ultrasound, computed tomography of the head, or magnetic resonance imaging) showing ventriculomegaly. It was from that point on that my husband and I would make it our mission to educate others on hydrocephalus. Growing up Marcos faced multiple surgeries and long hospital stays. While I was being born there were complications that resulted in the onset of hydrocephalus and the need for a shunt. Technical Support: webmaster@hydroassoc.org. They shaved off all my hair and took out my shunt. All rights reserved. The author of Adolescence Interrupted, a coming-of-age memoir that serves as a motivational road map for anyone forced to confront the overwhelming reality of a daily existence without stability or safety nets. In spite of the continued treatment given, Western Medical Treatment proved futile, and … It occurs in one or two per 1,000 live births. (Flickr/Wikimedia Commons) Hydrocephalus, literally “water on the brain,” is an abnormal build-up of cerebrospinal fluid in the brain cavities known as ventricles. 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